Family Newsletter
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JOHNS HOPKINS ARRHYTHMOGENIC RIGHT VENTRICULAR DYSPLASIA/CARDIOMYOPATHY PROGRAM Volume 3, Issue 2 In this Issue… 2013 ARVD Family Seminar Summer 2013 page 1, 2 Make-A-Wish® Recipient 2 Featured Manuscript 2 Heart Rhythm Society Abstracts 3 Hopkins Research Review 4 Research Opportunities 5 Patient Stories 6 Support Group Info 7 Upcoming Fundraisers 7 Make a Donation 7 ARVD Program Contact Info 7 Peter van Tintelen Mario Delmar Samuel Sears Marina Cerrone Save the Date Next Seminar tentatively planned for May 3rd, 2014 2013 ARVD/C Family Seminar The 14th Annual ARVD/C Patient and Family Seminar was the best one yet with approximately 170 individuals and family members affected by this condition in attendance.. CARDIAC SARCOIDOSIS MASQUERADING AS ARRHYTHMOGENIC RIGHT VENTRICULAR DYSPLASIA/CARDIOMYOPATHY: EXPERIENCES FROM THE JOHNS HOPKINS ARVD/C REGISTRY Binu Philips, MD, Srinivasa Madhavan, MD, MSPH, Cynthia James, ScM, PhD, Crystal Tichnell, MGC, Brittney Murray, MS, Saman Nazarian, MD, PhD, Hugh Calkins, MD, Harikrishna Tandri, MD, and Alan Cheng, MD This poster described clinical features that may aid in the differentiation of ARVD/C and cardiac sarcoidosis which is important because there is considerable overlap in clinical features of these two diseases.. “When I am good, I am very, very good, but when I am bad I am horrid.” 6 Mollie ARVD/C Program Staff ARVD Program Staff Hugh Calkins, MD—Director Harikrishna Tandri, MD—Faculty Daniel Judge, MD—Faculty Stuart Russell, MD—Faculty Theodore Abraham, MD—Faculty Aditya Bhonsale, MD—PostDoctoral Research Fellow Binu Philips, MD – Post Doctoral Research Fellow Cynthia James, ScM, PhD—Genetic Counselor Brittney Murray, MS—Genetic Counselor Crystal Tichnell, MGC—Genetic Counselor Check it out www.ARVD.com Contact Us ARVD/C Program Johns Hopkins Hospital 600 N.. Wolfe Street Blalock 545 Baltimore, Maryland 21287 Phone: 410-502-7161 Fax: 410-502-9148 Website: www.ARVD.com Looking for a support group ARVD support group o
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